In January, RFA reported to law enforcement our suspicion that an individual used the foundation’s name to conduct a raffle, but RFA had never received the money.  Yesterday the district attorney announced an arrest of an individual in this case.  We extend our thanks to law enforcement and will continue to support them in any way we can.

We wish to reassure our community that RFA is a legitimate foundation who has donated thousands of dollars through annual fundraisers and the money goes directly to the researchers who are working to find a cure for NPC.  The foundation is real, the researchers are real, the families are real and this fatal genetic disorder is devastatingly real.

While this incident could crush our spirits, we have only to look at Adam’s smile to know that we must preserve in our mission to race against time to find a cure.

We thank you for your outpouring of love and support.

Sincerely,

Race for Adam Foundation

The Race for Adam Foundation would like to sincerely thank Al DeMarco for raising awareness and money for Niemann-Pick Type C.  Your compassion is greatly appreciated!

8^th Annual 5K Results

Overall Male Winner - Kyle Gonoude

Overall Female Winner - Rylee Donaldson

Click here to view group winners!

Click here to view full results!

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